Eddie Vedder reflects on his fight to cure EB in Matter of Time clip
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Eddie Vedder reflects on his fight to cure EB in Matter of Time clip
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Meet my 4th baby: Fragile Wings, Fierce Hearts 🦋 When Mackenzie was born, we were told she had a horrific disorder (Recessive Dystrophic Epidermolysis Bullosa), with a life full of pain ahead of her. But we were also told there was hope. That research had recently facilitated 2 new FDA approved treatments for EB (and 2 soon became 3 within a few months of Kenzie’s life!). That research was nearing the science behind what will likely become a cure. I understand that we are years away from a legi
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115K views · 4.3K reactions | Eddie Vedder and Jill Vedder founded the EB Research Foundation to find a cure for EB, a rare and life-threatening genetic skin disorder that attacks the body inside and out. #ComeSayHi to Eli during the ABC WE Day broadcast tonight at 8pm ET and help make EB a thing of the past: https://pj.lnk.to/EV_EBFp | Pearl Jam | Facebook
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